{"id":292861,"date":"2016-01-18T22:26:57","date_gmt":"2016-01-19T03:26:57","guid":{"rendered":"https:\/\/policyoptions.irpp.org\/2016\/01\/why-its-time-for-a-national-autism-strategy\/"},"modified":"2025-08-28T15:24:55","modified_gmt":"2025-08-28T19:24:55","slug":"why-its-time-for-a-national-autism-strategy","status":"publish","type":"post","link":"https:\/\/policyoptions.irpp.org\/fr\/2016\/01\/why-its-time-for-a-national-autism-strategy\/","title":{"rendered":"Why it\u2019s time for a National Autism Strategy"},"content":{"rendered":"

Over a year ago, I was invited to celebrate World Autism Awareness Day on Parliament Hill.\u00a0 It was attended by a dozen or more Senators from both major parties, political staffers and invited guests mostly from an assortment of autism non-profit organizations.\u00a0 I expected a somewhat predictable \u2018feel good\u2019 event about how far we\u2019ve come and how far we have still to go.<\/p>\n

But an hour later there weren\u2019t many dry eyes in the chamber.<\/p>\n

It turns out, many of the politicians who decided to join the event that day had personal experiences with autism.\u00a0 One Senator spoke at length of his daughter who struggles to get adequate services for his grandchild with autism, and how challenging it has been \u2013 economically, physically and emotionally -for the whole family.\u00a0 He cried openly.<\/p>\n

Another Senator spoke of a family she knows that is struggling with long wait times for essential services, such as speech or behavioural therapy.\u00a0 More than one participant spoke of the difficult choice families have made to uproot from jobs and life-long communities and move across the country to Alberta or British Columbia where autism services are often more readily available and flexible, particularly if a family happens to have more than one child on the autism spectrum.<\/p>\n

Others spoke of the economic burden of pursuing private therapies \u2013 funded out of pocket, often in the tens of thousands of dollars per year \u2013 resulting in refinancing homes or selling them altogether just to get their child with autism the basic supports they need to learn and thrive.<\/p>\n

What became clear that day is something I\u2019ve heard autism champion, Senator Jim Munson say before: autism doesn\u2019t affect Liberals or Conservatives or NDPers. It\u2019s an equal opportunity neurodevelopmental disorder that affects Canadians across the political spectrum and clear across the country.<\/p>\n

What was also clear that day \u2013 and from a number of regional reports since -is that autism families in Canada are struggling<\/a>, that diagnosed cases of autism are on the rise<\/a>, and that most provinces<\/a> are not able to keep up with necessary services.<\/p>\n

According to a recent survey<\/a> from the Canadian Autism Spectrum Disorders Alliance (CASDA), almost three quarters of parents of preschoolers in Canada with autism wanted, but did not receive, early intensive behavioural intervention for their child -one of few interventions for autism with solid peer reviewed evidence.<\/p>\n

A similarly troubling report, released last month from the Ontario Auditor General, reveals that in some jurisdictions in the province, there are more children waiting for autism services than receiving them<\/a>, with more than 16,000 children on wait lists that continue to balloon<\/a>.<\/p>\n

This has largely been my own experience in Ontario.\u00a0 Despite being a proud advocate of our universal health care system, which is intended to serve those in need and not just those with the ability to pay, I found it failed me when I needed it most.\u00a0 When my son did not meet traditional developmental milestones, I discovered I would have to wait years to get a diagnosis in the public health system.\u00a0 We paid for a private diagnosis instead, but then we still had to wait more than two years for publicly funded behavioural therapy, which was provided to us for only six months.<\/p>\n

It was all too little, too late.\u00a0 Like so many other families affected by autism, instead of just waiting, we paid for our son\u2019s essential health services privately \u2013 and he blossomed as a result.\u00a0 We are one of the lucky ones who could afford to do so, though not without struggle.<\/p>\n

Dire headlines<\/a> on gaps and lacks<\/a> in autism services are recurrent in the media from multiple regions<\/a> across the country; you can almost recycle the headlines and simply rotate the province named.\u00a0 It\u2019s not an exaggeration to say we have an autism services crisis in Canada.<\/p>\n

So what can be done?\u00a0 Plenty.<\/p>\n

Evidence shows that proper health and educational supports for those affected by autism pay off.\u00a0 Early intervention<\/a> is key and heads off more expensive and extensive supports that are needed later in life if early intervention is not provided.\u00a0 It makes economic sense, in other words, to provide autism services early.<\/p>\n

Kids with autism are not lost causes, they are full of potential.\u00a0 We are failing them.<\/p>\n

The last federal government made a good start establishing an Autism Spectrum Disorder Working Group to bring together those working on the issues across the country to discuss key concerns and share best practices.\u00a0 But much more federal support is required to make things better \u2013 now -for Canadian families affected by autism.<\/p>\n

For starters, the new Liberal government could dust off the excellent cross-party Senate report \u2013 aptly titled \u2013 Pay Now or Pay Later: Autism Families in Crisis<\/em> from 2007 and get to work.\u00a0 It\u2019s number one recommendation? A comprehensive national autism strategy.<\/p>\n

We\u2019ve waited almost a decade.\u00a0 Now is the time for the federal government to bring together the brightest minds in the country on the issue and enact a federal strategy to give our kids with autism the services they need to survive and thrive in communities across the country.\u00a0 It\u2019s not only the right thing to do, it\u2019s the smart thing to do.<\/p>\n","protected":false},"excerpt":{"rendered":"

Over a year ago, I was invited to celebrate World Autism Awareness Day on Parliament Hill.\u00a0 It was attended by a dozen or more Senators from both major parties, political staffers and invited guests mostly from an assortment of autism non-profit organizations.\u00a0 I expected a somewhat predictable \u2018feel good\u2019 event about how far we\u2019ve come […]<\/p>\n","protected":false},"author":913,"featured_media":292859,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"content-type":"","ep_exclude_from_search":false,"footnotes":""},"categories":[],"tags":[],"article-status":[],"irpp-category":[],"section":[],"irpp-tag":[],"class_list":["post-292861","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nWhy it\u2019s time for a National Autism Strategy<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, 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